January 30th, 2013- Today has been a whirlwind of tests and lots of unknowns. I woke up with the chest tightness again plus a soreness in my PICC line arm, but when the lasix failed to make me feel any better the questions started. I ended up getting a chest x-ray, EKG, echo of my heart, and an ultrasound of my PICC line. The good news is that my heart is working just fine but I have a few other issues going on. First off, the ultrasound of my PICC line showed the beginning of a clot. Thankfully it is a nonocclusive blood clot so it isn’t blocking or hurting anything yet. The bad news is they don’t want it to get worse so after my last chemotherapy early tomorrow morning they plan on scheduling the removal of the line. They are discussing waiting to put another back in, which would go in my other arm, as I am done with chemotherapy for awhile, but I am such a hard stick it may be necessary for nightly blood draws regardless. The chest tightness is actually mucositis which is an inflammation of my digestive tract and due to the inflammation of my esophagus there is quite of a bit of pain in my chest. I will tell you that it is not a good feeling and even with all of the test results I can’t help but think my heart is having issues. Things with my throat have gotten worse as the day has gone on and tonight it has been a bit difficult to even swallow. The only real options are pain medication and to do my best with everything so I hope this can pass quickly. The craziest part is I completely forgot I was due for another LP, spinal tap, this morning but that got postponed until tomorrow due to everything else. I am not looking forward to laying on my stomach/chest with this pain.
Bryce came by just in time to save me from a complete stress meltdown and was thankfully extremely cheerful today. He had tons of energy thanks to Grammy getting him down for an hour long nap this morning to fit our new attempted schedule. We spent the afternoon wearing one another out and I got to walk him to sleep before he left with Grammy. Every moment with him makes me feel so blessed even in this difficult time and I cannot stop thanking God for allowing him to come before all of this started.
Mommy cuddled up in the chair with her little man.
Grammy holding an easily distracted Bryce.