April 11th, 2013- I took a break from my blog during my break from the hospital but today I am back in to begin preparing for my bone marrow transplant. I was feeling very well at home and my blood counts have been staying normal, so I decided to focus on my family during my free time instead of worrying over what was to come. The results of all my tests came back relatively normal but one of my pulmonary tests came back a tiny bit low. Due to my slightly elevated liver counts during this whole ordeal and that one test the doctor recommended a change to my treatment last week. I was previously going to be receiving two days of chemotherapy and four and a half days of total body irradiation twice a day. I will now be getting seven days of chemotherapy and a single dose of radiation the day of transplant. Both treatment protocols are intended to wipe out my bone marrow completely and just vary in terms of how they are handled by the body. The radiation can be particularly hard on the organs and so they went ahead with the change after my tests.
I came in this morning at 6:30am for surgery and got my central line placed. I went straight to my room upstairs after a short recovery and began receiving chemotherapy this afternoon. I will be getting cytarabine for five continuous days without a break and then will get cytoxin once for the next two days. I am not looking forward to being stuck to my IV pole for that long but thankfully the cytoxin after is not all day. I have a single day of nothing and then radiation in the morning followed by the bone marrow transplant on April 19th.
They count days before the transplant as negative days leading up to transplant on Day 0 and what they call my second birthday. I will be posting my days in relation to Day 0 because 100 days is my new biggest goal. The first 100 days are the most crucial time to watch for major graft versus host disease and other concerns.
Bryce began crawling about a week ago which has been such an amazing gift to see before I came back. He is still growing like a weed and I swear if I watch him closely enough he will visibly grow before my eyes. Figuring out what he can reach is his new favorite game and our scary moments but it is such a joy to see my little man moving. All of his teeth also decided to start coming in so he now has eight teeth which just makes his smile that much cuter. I am a little worried about what he will do at the hospital with such limited crawl space but he did visit today for a bit and did okay-ish. I am definitely a bit stressed jumping back straight back into treatment today but as always I have so many amazing reasons to stay strong.
My little man passed the 8 month mark!
Grass is far more interesting than posing for pictures.
One big happy family!